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Who We Are

Welcome to the Huntington's Disease Society of America's Upper Mid-West Region. Our region covers Iowa, Minnesota, Nebraska, North Dakota, and South Dakota. Our region includes the following chapters and affiliates: Iowa Chapter, Minnesota Chapter, Northern Plains Chapter, Northern Prairie Affiliate, Omaha Affiliate, and South Dakota Chapter.

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families.

Our Vision

A world free of Huntington's disease.

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.

HDSA Centers of Excellence in Our Region

The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research. HDSA currently has 41 Centers od Excellence across the United States. Our region is fortunate to have these institutions as part of this outstanding program:

HDSA Centers of Excellence

University of Iowa (IA)
Hennepin County Medical Center (MN)
University of Nebraska Medical Center (NE)

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page.

HDSA Upper Midwest Region contact

Melissa Wind
HDSA's Upper Midwest Regional Development Manager
Phone: 605-799-5812